Columnist Sherry Toh shares some of the cost concerns that continue for SMA patients in Singapore, despite government aid.
Newborn screening followed by treatment improved survival, motor function, and milestone achievements in SMA type 1 in Turkey ...
Columnist Brianna Albers goes to a great hospital. So why is she scared about a somewhat routine cortisone injection?
Children with SMA have a higher risk than others of developing severe respiratory syncytial virus infections, a study from Taiwan found.
An upcoming SMA webinar will explore relationships, careers and travel, with patient advocates sharing lived experiences beyond the clinic.
While we push for a better world in terms of accessibility advocacy, we must also refuse to cede an inch, writes columnist.
Reduced SMN1 activity affected nerve cells differently, even within the same cell type. Motor neurons and touch receptor neurons showed different defects depending on their subtype and developmental ...
It’s indisputable that people with SMA deal with unpredictable life events. I truly believe that our superpower is becoming exceptionally good problem-solvers and crisis managers out of necessity. To ...
August is SMA Awareness Month, with global events to raise awareness for the genetic disease. Significant progress in SMA treatment and diagnosis has occurred, but challenges persist. Advocacy groups ...
SMA causes mobility limitations, making it difficult to find suitable vacation rentals. A new campaign expands accessible short-term rentals for SMA patients. The Becoming Rentable platform offers ...
Share this page with email Share this page on Facebook Share this page on X Share this page on Reddit Print Preferred Source on Google I had a date with Count Dracula. An award-winning ballet ...
Prenatal treatment with an Evrysdi-like compound improved weight, movement, muscle health, and survival in mice with severe SMA. Some benefits were not fully maintained after treatment stopped at ...